http://thinkgene.disqus.com/a bio blog about genetics, genomics, and biotechnologyenFri, 06 Feb 2009 22:30:21 -0000http://www.thinkgene.com/coriell-is-medical-research-responses-to-common-concerns/#comment-6061047<p>He probably means NYC, LA, Chicago, etc.</p><p>Otherwise, it's not considered national news to be only available in Philadelphia.</p>SamFri, 06 Feb 2009 22:30:21 -0000http://www.thinkgene.com/coriell-is-medical-research-responses-to-common-concerns/#comment-6059882<p>Philadelphia is not a "major metropolitan area"? Really? You must never have been here.</p>Ben MFri, 06 Feb 2009 20:57:02 -0000http://www.thinkgene.com/coriell-is-medical-research-responses-to-common-concerns/#comment-5833537<p>The FAQ, which is written for layperson participants, says:</p><p>"You WILL NOT receive results for all genetic variants. Genetic variants associated with medical conditions for which there is no treatment or intervention to reduce the risk of disease WILL NOT be reported back to participants. For example, variants elevating risk for incurable diseases such as Alzheimer's disease will not be reported. If a new therapy or lifestyle intervention is reported, the ICOB may update a condition to be "potentially medically actionable.""</p><p>I see no statement here that refutes my claim. Yes, the scientific justification isn't mentioned, but that's because this is a layperson's FAQ, not a brief regarding the design of the medical study.</p><p>As for "free" ... I'm really at a loss to intelligently address this other than repeat that participation in this medical research is at no cost to participants, and that it's not charity, it's research. What would the "study" study if participants didn't provide any data?</p><p></p>Andrew YatesWed, 04 Feb 2009 07:55:58 -0000http://www.thinkgene.com/coriell-is-medical-research-responses-to-common-concerns/#comment-5827808<p>"Coriell does not provide access to the raw genomic data because the scientists who designed the study decided that would introduce extraneous variables."</p><p>Uh, no. That is NOT what is stated in their FAQ list: <a href="http://cpmc.coriell.org/Sections/About/FAQs.aspx?PgId=13" rel="nofollow noopener" target="_blank" title="http://cpmc.coriell.org/Sections/About/FAQs.aspx?PgId=13">http://cpmc.coriell.org/Sec...</a></p><p>And Coriell's study is not "free". You are in fact providing something of value to them (your DNA, questionnaire, etc.)</p><p></p>AnonTue, 03 Feb 2009 23:17:44 -0000